Okay so first and foremost I want to preface this video by saying I’m not a spokesperson for anything I do not want my voice to silence others especially those who do not have a verbal voice I’m not the all-knowing of autism or anything else this is my experience the my experience only so please understand that I am NOT.
Speaking for anybody else so I’ve had a lot.
Of people asked me about this and wanted the process and how it happened especially people who have known me for a long time so basically I’m gonna.
Go over how and why I got a 12 page diagnosis of autism it’s decaf don’t worry okay so I guess I’ll just start kind of from the beginning I’ve been going to therapy for as long as I can remember but I started going to this new therapist because my anxiety was getting worse and worse and worse and worse and I just wanted help so I go in to see her for the first time and I’ve gone over you know I was having really bad issues being around people and being touched.
And I couldn’t go in places where I was and all these other things she wrote down in her report that she diagnosed me with obsessive-compulsive disorder because my endless over and over and over and over thinking like for example it fine this this is just this is just an example of how my thinking would go from one.
End to catastrophizing I would think oh I’m really sick I don’t think I should go to work today and then God well if I don’t go to work I’m gonna get.
In trouble and if I get in trouble that I’m gonna lose my job if I lose my job how am I gonna pay for things I’m gonna have to try and get another job really fast and.
That’s gonna be super stressful cuz it’s already really hard finding a job and then if I don’t find a job how am I gonna pay for my car and my rent and my groceries and my bills and all these other.
Things if I can’t pay for that then I’m not gonna have a car and I’m gonna have to use the bus and if I have to use the bus what if.
There’s emergency I can’t call an ambulance because that’s a $700 copay to get me to a hospital and that it just it just keeps going from there and so I was like okay OCD doesn’t sound super right but some of it makes sense.
And then in our second session we were just talking about things and experiences and she asked me have you always had trouble with eye contact and I.
Didn’t realize that I wasn’t looking at her I just said I don’t know but apparently I hadn’t looked at her at all in the past two sessions which is something I never noticed and now that she brought to my attention I see how uncomfortable I contact is for me and so that really got me curious about what was going on so I was going to see my nurse practitioner about the medicine I was.
Taking at the time and she said have you ever seen a psychologist that’s best specializes in autism and immediately I said what cuz I never thought about it I don’t I.
Didn’t know anything about ASD or anything really she said.
Well it’s it’s something that you.
Should maybe consider so I did so she referred me to.
A psychologist here in town who specializes especially in evaluating and doing assessments for ASD which is where this 12-page support came from so I called the psychologist and I asked her you know how does this water go because I have no idea she said you know go over how you were as a child and stuff and I asked her well what if you don’t remember much of your childhood because I don’t I can remember things that I’ve seen in.
Pictures and I can remember.
Everything that I’ve seen in home videos but I can’t actually remember that experience as a kid when I finally got my report she did say that was her first red flag actually.
Says I’m here she can only remember videos that she has seen herself in this difficulty with remembering especially episodic memory is consistent with an tisn’t spectrum disorder and so the first day I go there we basically just go over how this is.
Gonna work and so I did we’ll see I did three days of testing and each day it was between an hour to two and a half hours of testing it wasn’t just a fill this out I think we did a diagnostic interview a social and developmental history autism diagnostic observation schedule second edition so in a toss to and then the million clinical multi taxol inventory fourth edition MCM I for the inkblot test social responsive skill self-report and parent ratings the last two I had to fill out this questionnaire about.
Myself as a child and I think in the last like two years of things that I dealt with and stuff and then my parents had to.
Each parent had a separate paper that they had to do and then my partner she had to fill one out too so that all of that was included in the Diagnostics for the assessment audrey was administered the autism diagnostic observation schedule second addition to a jaws to mark module four which is for adolescents and adults with fluent speech I didn’t have any delays in speech which is sort of one of the early indicators autism spectrum disorder like Temple Grandin she didn’t speak until she.
Four years old and one of the things that was super important this is that um it is especially difficult to diagnose female female adults with average or above-average intelligence with autism spectrum disorders as they try to be compliant and cover up some of the symptoms also known as autistic camouflage in some communities and so with these tests.
Now I don’t or I don’t understand what these tests were supposed to show because these aren’t tests that have right or wrong answers because it’s an evaluation we did an ink blot test which doesn’t necessarily diagnose autism spectrum disorder but it rules out other things because a lot of symptoms can mimic other conditions or disorders.
And she gave me this book there was just pictures and I just had to look at it and then and she said what do you think and I told her what I thought and then there was another test where she gave me these inanimate objects and I had to tell the story.
With them I’ll probably make a separate video to talk about those things but those were just some of the things that I had to do and then I also I had to fill out one of.
Those questionnaires that my parents and my partner had to fill.
Out and then I had to do a separate questionnaire in her office on the computer don’t really know sport but that’s just what I had to do you know this is this is 12 pages so I’m obviously not.
Gonna read all of this but I am going to go over there’s this small section that basically says the summary of the report and it says the personality profiles from the MC mi4 and I don’t know what consistent with characteristics one would see in someone with an autism spectrum disorder those profiles history provided by her parents as well as this examiner’s evaluation of her with the 8oz – and her self-report on the social responsiveness scale are.
All consistent with an autism spectrum disorder autism spectrum disorder appears to be the best explanation for the entire array of symptoms seen by the examiner and reported by operator and then if you look and so this this is like the summary page you can see here that the diagnostic impressions are autism spectrum.
Disorder persistent depressive disorder and obsessive-compulsive disorder and that was basically like in the in the main summary and then.
She went through and did like a full list of recommendations that would be helpful for me I’m as far as therapy and looking for jobs and keeping jobs maintaining relationships and all.
These other things and then there’s a psychometric summary that she did and it goes over basically the score of each test.
Communication reciprocal social interaction imagination creativity stereotyped behaviors and restricted interests and.
Then a das2 classification autism or I’ve had a lot of people say you never seen autistic to me and in a lot of cases that’s probably true but I also think that or that is lack of it about about ASD and any sort of conditions in general because.
Honestly before any of this came up I didn’t know anything about it now that I know I can make a lot more sense of it what little I.
Do remember as a child a lot of it makes sense I remember.
I would love when my dad would roll me up.
In a blanket like a burrito and his compression and I felt amazing and I loved it and it was comfy and it was great and then I have videos of me doing repetitive things for extended periods of time I’ve always been extremely sensitive to light and sound especially when there are two sounds going on at the same time like if I’m watching TV and someone’s playing something.
On their phone or when I was little I remember it would drive me crazy when I was watching TV and I could hear my dad playing guitar and his app was so loud it was it just it just just brain’s bloated so that’s how I got my diagnosis and since then I’ve been working with a local organization that helps adults with autism get and maintain.
Jobs and I’ve been eating differently to help with the digestive distress that comes with constant sensory overload and anxiety and in general just understanding myself better has helped tremendously I don’t feel as strange anymore it just all makes a lot more sense I make.
More sense to myself I do plan on making other videos about symptoms displayed and what I do to cope and how it affects my relationship and my life and things like that but this is just a basic video this is sort of just an intro video so if you have.